Table 5 Quotes illustrating preferences regarding OPBT features
Participant ID, genetic status, gender, age | Quote | |
|---|---|---|
Q16 | R3, 50% risk, female, 30–40 | “I think ten years is very long. The longer the period, the closer you get to testing yourself for the gene, because I could test myself for the gene now and then I have the risk that I become ill in 25 years. That is a pretty long period, and then I think: well, what can I do with that knowledge at this time? I think when the period is a bit shorter, then the need to do something with that information becomes bigger.” |
Q17 | R17, known carrier, male, 40–50 | “I’ll give an example. If I say to someone: ‘You have a year left.’ And he spends all his money in one year, and then you say: ‘Well, sorry sir, but you have another four years.’ (…) If you say to someone for example: ‘You have a year left’, he will live toward that moment the whole year. And when it turns out after a year that nothing is going on… it has to be accurate.” |
Q18 | R18, 50% risk, female, 20–30 | “It’s also not that it should become a part of my life, that every month I [think]: oh right, here I go again. So no, I think one, two times every year, that I would find that sufficient. You know, otherwise I think you are too preoccupied with it, like: is it coming, is it coming?” |